CHD Awareness: Supporting Congenital Heart Disease Awareness Week 2025

Congenital Heart Disease Awareness (CHD awareness Week) is observed annually from February 7–14, shining a spotlight on congenital heart defects (CHD), which are the most common type of birth defect worldwide.

This week is part of a larger effort during CHD Awareness Month in February to educate the public, support families affected by CHD, and promote research to improve diagnosis, treatment, and care.

In 2025, CHD Awareness Week continues its vital mission to raise awareness about CHD, honor those living with the condition, and remember those who have lost their lives due to congenital heart defects.

What is CHD?

Congenital heart disease (CHD) refers to structural defects in the heart that are present at birth.

These defects can range from simple issues like small holes in the heart to more complex conditions affecting how blood flows through the heart and to the rest of the body.

Common Types of CHD

• Atrial Septal Defect (ASD): A hole in the wall separating the heart’s upper chambers.

• Ventricular Septal Defect (VSD): A hole in the wall between the lower chambers of the heart.

• Tetralogy of Fallot (TOF): A combination of four heart defects that affect blood flow.

• Transposition of the Great Arteries (TGA): The positions of the main arteries leaving the heart are reversed.

• Hypoplastic Left Heart Syndrome (HLHS): The left side of the heart is underdeveloped.

According to the Centers for Disease Control and Prevention (CDC), approximately 1 in 100 babies is born with CHD each year in the United States, making it the most common birth defect.

The Importance of CHD Awareness Week 2025

1. Raising Awareness

Many people are unaware of CHD and its impact. CHD Awareness Week aims to inform the public about this condition, highlighting the challenges faced by those living with CHD and their families.

2. Supporting Research

Advancements in medical research have significantly improved the survival rate for children with CHD.

Increased funding and awareness during CHD Awareness Week help support critical research into early diagnosis, innovative treatments, and long-term care options.

3. Promoting Early Diagnosis

Early detection of CHD can lead to better outcomes. Prenatal ultrasounds and newborn screenings play a crucial role in identifying heart defects early, allowing for timely interventions.

How to Get Involved in CHD Awareness Week 2025

1. Wear Red for CHD Awareness

Participate in CHD Wear Red Day during CHD Awareness Week to show solidarity with individuals affected by CHD. Wearing red is a simple yet powerful way to spread awareness and spark conversations about CHD.

2. Share CHD Awareness Stories

Social media platforms are valuable tools for raising awareness. Use hashtags like #CHDAwareness, #CHDAwarenessWeek, and #WearRedForCHD to share stories, photos, or facts about CHD.

Personal stories from families affected by CHD can inspire and educate others.

3. Host Fundraisers and Events

Organize or attend community events like walks, runs, or bake sales to raise funds for CHD research.

Donations can support organizations like the Children’s Heart Foundation and the Adult Congenital Heart Association (ACHA).

4. Support CHD Awareness Products

Purchasing CHD awareness products like stickers, bracelets, or apparel is another way to contribute.

These items not only help raise funds but also serve as conversation starters about the importance of CHD awareness.

5. Educate Yourself and Others

Learn about the symptoms of CHD in children and adults. While many CHDs are diagnosed at birth or during infancy, some defects may not be detected until later in life.

CHD Awareness Through the Years

CHD Awareness Day 2023

In 2023, campaigns focused on early detection through prenatal care and newborn screenings.

Events highlighted advancements in minimally invasive heart surgeries and long-term care for CHD survivors.

CHD Awareness Month 2022

The 2022 observance emphasized the importance of mental health support for individuals with CHD and their families.

Living with a chronic condition often involves emotional challenges that require attention alongside physical health.

Living with CHD: Challenges and Hope

For Children

Children with CHD often require multiple surgeries, medication, and regular follow-ups with specialists. Despite these challenges, advances in medical care have enabled many children to live fulfilling lives.

For Adults

Thanks to medical advancements, more children with CHD are surviving into adulthood. However, lifelong care is essential to monitor potential complications, such as arrhythmias or heart failure.

Support Networks

Families affected by CHD benefit greatly from support groups and organizations. Groups like the Children’s Heart Foundation and Mended Little Hearts provide resources, advocacy, and a sense of community.

Key Messages for CHD Awareness Week 2025

• CHD is Common but Often Misunderstood: Congenital heart defects affect millions worldwide, yet many remain unaware of their prevalence and impact.

• Early Diagnosis Saves Lives: Prenatal and newborn screenings are critical for identifying CHD and initiating treatment.

• Support for Families is Crucial: Families of children with CHD face emotional, financial, and logistical challenges. Community support and resources can make a significant difference.

• Advancements in Research are Transforming Lives: Continued investment in CHD research is vital for improving outcomes and quality of life.

Resources for CHD Awareness

Here are some trusted organizations and resources to learn more about CHD and get involved:

• Children’s Heart Foundation: Dedicated to funding CHD research.

• Adult Congenital Heart Association (ACHA): Provides support and resources for adults living with CHD.

• CDC – Congenital Heart Defects: Offers detailed information on CHD statistics, types, and prevention strategies.

Conclusion

CHD Awareness Week 2025 is an opportunity to raise awareness, support families, and advocate for research that can save lives.

By participating, whether through wearing red, sharing stories, or donating, you can make a meaningful impact in the fight against congenital heart defects.

Let’s unite during CHD Awareness Week to educate others, honor those affected by CHD, and pave the way for a brighter future for all individuals living with this condition. Together, we can make a difference—one heart at a time.